“What’s it like, being disabled? As in, day to day?”

For a long time, this question stymied me. I had no frame of reference, no way to start with “normal” and paint a picture of what “abnormal” might look like. I could describe specific obstacles, particular incidents, but I had no sweeping, instantly relatable analogy–no lens to capture what this life is like when it’s the only reality I’ve ever known.

Many have taken a crack at this tough little nut, and come up with innovative ideas along the way. Being disabled, some say, is like playing a video game on the highest difficulty setting. Others say it’s like navigating an obstacle course while everyone else uses a sidewalk. Some of us resort to hiking metaphors. Your path is wide and smooth; mine is a rocky, treacherous trailblaze of a life, which manages to be as hard as people assume, and at the same time, much easier.

It was not until I stood on a slushy street corner, waiting for an unusually long light to change, that it hit me. I had found my personal metaphor, and it was one that covered an astonishing amount of ground in the simplest way.

Being disabled, I realized, is a lot of standing on the corner, waiting for the world to decide that it’s safe for you to cross. My life as a disabled person involves a lot of standing still, watching cars fly freely by, wondering when the light will turn green long enough for me to make some headway. Since the system is more complicated than I can wrap my head around, and there’s no handy countdown, I have no clear idea when that might happen. So I wait, getting increasingly cold and impatient, for a path forward. Some days, it feels as though the world is filled with cars, and I am the only pedestrian in sight. They are roaring along while I walk and wait, walk and wait.

I wait for accommodations to be put in place. I wait for my paratransit ride to show up. I wait for technology that promises to save me. I wait for people to decide I’ve proven myself worthy. I wait for attitudes to change, for fears to be calmed, for unreasonable limits to be stretched. I wait for accessible products in a world where nothing is designed for me—nothing I can afford, anyway. I wait, sometimes quietly, more often restlessly, for the world to make room for me.

Then, when the waiting becomes too much for me, I try to jaywalk. I barge right into the unsafe spaces, the heavy traffic, the uncharted territory. I might get a warning or a slap on the wrist or even an angry honk from someone’s horn; occasionally, I retreat to my corner, chastened. I am foolish and fragile. I must be protected from myself, and from shadowy figures who would exploit me. I must be patient. I must be understanding. I must realize that change doesn’t happen overnight. I must not ask how long this light will stay resolutely red. I must not point out that everyone else seems to be cruising while I am plodding.

All in good time. Soon enough. Someday, if you go the extra mile.

Walk and wait.

Every now and again, that light turns green and I make real progress. Barriers are overcome, and my journey picks up speed. Life comes so easily that I have time to forget, if only for a few moments, that I was ever a lowly pedestrian in a dangerous network of drivers. The reprieve might even be long enough for me to point at other unlucky foot travelers, and to wonder loudly what they’ve done–or left undone—to leave themselves stranded at the corner.

Inevitably, that light turns red again, and I remember what it is to stand still, thwarted by incompatible software or a narrow-minded employer or a skills gap. There’s always something, and that something brings me back to the corner, where others can gawk at my inactivity and imagine how I brought it on myself. And it’s back to the waiting game.

With too much prodding, the metaphor falls apart, as so many of them do. Living as a disabled person is typically far less passive and futile than this framework would suggest. There is worthwhile work I can do while I stand on that corner. I am not a helpless victim of a static system, and I can certainly jaywalk if I wish, with the result likely to be rather tamer than death. Disapproval and societal exclusion aren’t quite as dramatic as an altercation with a speeding car, and I’m seeing genuine, lasting steps forward all around me. I am more welcome, more respected than I have ever been, and it’s not all down to my own advocacy.

Nevertheless, I use this comparison because it explains why the hurry-up-and-wait nature of living with a disability is so interminably frustrating. While my every success feels hard-won and snail-pace slow, my nondisabled peers seem to sail through most challenges, hitting so many green lights they don’t even notice I’ve fallen behind. For them, a red light is an inconvenience, not a brick wall, and no one is telling them to take those red lights gracefully. Meanwhile, I’m reminded to be grateful I’m allowed to cross at all. Commonly enough, the criticism comes from fellow disabled people, who are quick to condemn and still quicker to remind me that it could be worse.

I work toward a world in which I’m not always suspended in mid-stride, waiting for something to change or improve or move out of my way. I hope the next generations will know less and less of what it is to fall behind not because they are moving too slowly, but because the rest of the world hasn’t caught up. As I anticipate the birth of my first niece/nephew, I wish with all my heart that should they face barriers similar to mine, they will not need to be so patient and gracious and grateful. And I hope that, when the time comes to jaywalk, to break the rules and challenge the status quo, they will have the courage to do it, and the good fortune to emerge triumphant.

If you ask me, that future is definitely worth waiting for–but sooner rather than later, please.


Yes, Blind People Can Use Computers

Being blind in the 21st century means I get to have conversations like the following two:
1. “So, I’m interested in this job…”
“Oh, no, impossible, sorry.”
“Well…you’d need to use a computer, you see…”
2. “Hi. I’m new to this chat site and I can’t figure out what I’m doing. I’m blind, so I need some shortcut keys instead of mouse commands. Does anyone know any?”
“If ur blind then how are u using a computer? Ur obviously faking it.”
“Ur looking for attention”

I’d like to think that awareness of what blind people can and can’t do is more widespread than it’s ever been, thanks to the internet and the many blind writers and speakers out there. Despite all the awareness campaigns and advocacy groups, the idea that blindness and computers don’t mix remains stubbornly entrenched. While most people seem to understand that I must use some kind of computer—probably a “special” one—many are still under the impression that I must dictate my blog posts to a hired aide. Given how prevalent computers are in every facet of society, and how vital they are for the accomplishment of even the simplest tasks, it’s no wonder that people believe we’re on the fringes! It’s not surprising that we’d be lumped in with, say, Great Aunt Rosie who still refuses to touch a keyboard.

No matter how often we tweet, “like,” share, blog, and text, some people are still convinced we are unable to use a computer or similar electronic device independently (or at all). I suppose they assume we have assistants who manage every aspect of our online lives. Who knows what they assume goes on when we try to work? When you think about it, it’s not altogether unreasonable for these people to believe we couldn’t possibly work, because of how deeply computers have penetrated the workplace. How can we be expected to function as equal, contributing members of society if we can’t even update our Facebook statuses or pay the phone bill on our own? Even if we can use computers, how exactly do we manage it, since we can’t see the screen?

In my everyday life, computers are not only usable, but necessary. I have a smart phone and a laptop, and I use both daily. As I’ve previously discussed on this blog, computers help me through a variety of hurdles, among them reading printed documents, deciphering labels, finding my way around the city, and communicating via all the social networks. Computers are not only within my ability to use; they are also a portal to parts of the world I never could have accessed without them.
So, how do I use computers? Since I can’t see the screen at all, my smart phone and laptop are both equipped with a screen reader, which is a piece of software that runs in the background and reads the information on the screen using text-to-speech output. (For the low-vision users among us, screen magnification suffices.) It is also possible to read what’s on the screen in braille, provided you have a braille display handy. If you have an iPhone, you can demo Voiceover, the built-in screen reader; it’s lots of fun. Otherwise, there is a wealth of information online about all the different screen readers, so if you want to learn more about them, you could easily dedicate an afternoon to that research. For our purposes, all you really need to know is that, with the help of special software, computers and phones are mostly, if not totally, accessible to blind people all over the world. Assistive technology is expanding so that we can access everything from GPS trackers, to smart televisions, to bank machines. With the help of this software, I can do most of what a sighted computer user can, putting me on a more equal playing field than a blind person from the past could even imagine. While using a computer to navigate the internet, you’d never even know there was anything different about me at all.

Yes, blind people can use computers, and have done so for decades. Yes, we can (usually) perform well in workplaces using computer software, as long as that software supports our screen readers. Yes, we can send texts, write tweets, and manage online banking independently. Yes, we can develop software, write programs, and administer technical support.
Yes, we can keep up.

So, next time you meet someone who believes blindness and computers are like oil and water, do us all a favour, and pass on the good news!