Month: April 2021

The Privilege of Showing Up

Posted by

1

Every time I look at my phone these days, the Zoom hate is everywhere. People can’t wait to get back to “real” life, where almost everything of consequence happens in person. My postsecondary student friends are daydreaming about returning to campus in the fall, all of my colleagues seem more than ready to have meetings around the boardroom table again, and my family is already planning crowded social events once everyone is vaccinated.

As for me, I miss the energy of in-person gatherings, a little, but I can’t deny that this “fake” life people can’t abandon quickly enough has been pretty kind to me, accustomed as I am to a world where showing up in person is perceived as essential. Demonstrating competence, commitment and success demands your physical presence, whether or not said presence is logistically required. That hasn’t worked out so well for me.

You see, I am not known for my in-person attendance record outside of work contexts. Chronic pain sufferers often struggle with uneven energy reserves and mobility, and my subpar travel skills as a blind person don’t help. I was the kid who missed a staggering amount of school, forever behind and fighting to catch up. In university, when my pain levels were at their highest, I once missed two thirds of my classes in a single semester. Rarely did I commit myself to non-essential in-person events of any kind, because I hated the shame of last-minute cancellations. Just because people were mostly gracious didn’t mean they weren’t quietly categorizing me as flaky.

In the past year, my schedule has looked quite different. Social events every other week. Book clubs. Committee meetings. Resource group chats. Live readings and author interviews. I’m signing up to everything, planning potential presentations, even doing a little on-the-fly consulting work. I hardly recognize myself.

The difference, of course, is that everything is virtual now. I can attend a book club in Minnesota, watch a live performance in New York City, participate in a Q & A in Colorado. Signing up to serve on committees and resource groups, in and outside work, requires no more of me than an internet connection and my willingness to be useful. No taxis, no transit, no anxiety about finding the venue or locating a seat. No getting lost or looking foolish. Just logging in like everyone else.

If I’m in horrible pain and can’t travel? No problem. I medicate as needed, grit my teeth, and get through the meeting as well as I can. No one needs to know I’m attending from my bed. If my camera stays off, they don’t even need to know I’m blind, necessarily. (The way I am treated before versus after people find out is a story for a whole other post, by the way.)

Until the world opened up for me in terms of accessibility, I assumed I was especially disengaged. I figured I was just not a group person. Not a committee person. Not a ‘show up to everything’ person. A home body, you might say, who didn’t gain energy from interacting with others outside of small, intimate groups.

Sure, I’m still an introvert who is choosy about what she signs up for. I only have so many spoons, and I want to use them wisely. But now I have a better sense of what I’m capable of as a professional and social contributor, because so many of the barriers are temporarily removed. It turns out that I like showing up and getting things done as much as the next person; there was just a great deal in my way. The same might be true for someone who finds in-person activities easy but who doesn’t have a stable internet connection, or gets fatigued by screens, etc.

This is not an original take, I know, but consider this post my plea for a thoughtful, accessible approach to returning to “real” life. It’s past time we adjusted our ideas about what constitutes competence, commitment and success, because not everyone can or should show up in the same ways, and it’s ableist as hell to assume a physically present person is more invested and more worthy than someone who can’t attend.

Lots of people have hated every second of this lockdown lifestyle. Some of us have never felt less locked down. Let’s think seriously about why that is, and what we can do about it.

Perhaps we should start a committee? I’ll send out some Zoom invitations. I do that now.

My Best, Most Exhausting Self

Posted by

0

I wandered out of my bedroom last week, dressed casually for a walk to Starbucks, only to have my husband point out that I’d colour-coordinated my socks and my hair elastic. Both were pink, not that I’d noticed, and the observation was sitting funny with me. When was the last time I’d intentionally colour-coordinated anything? How long had it been since I’d bothered to choose an outfit, rather than slipping into what was most functional? I couldn’t remember, but it had been several months at least, maybe longer.

After my workplace sent me home in March of last year, I made a noble but short-lived commitment to dress professionally, groom to business-casual standards, and pretend I was going into the office every day. I soon lapsed into sweats and tank tops like almost everyone else, assuming things would be back to normal in a few weeks and treating myself to a little well-deserved sloppiness after a lifetime of self-consciousness. What would be the harm?

A year later finds me as casual as I was then, largely unaware of what I’m wearing and which coloured elastics are holding my artless ponytails together. I’ve allowed my hair to grow to my hips and beyond. My jewelry collection is literally gathering dust. My work wardrobe is wrinkled after a year of sitting unworn on hangers that have been pushed to the back of my closet. I think my fancier boots and heels are in a box somewhere; I’ve moved and have not yet unpacked the relics of what feels like a former life – a life in which I left the house regularly and cared what people thought of me.

This new carelessness would have been unthinkable before COVID-19 shuffled my priorities. As a blind woman, I have been conditioned from the cradle to obsess about how I appear to others, by well-intentioned people who wanted the very best for me. Atop the default pressures of feminine presentation—look young, pretty, unblemished, controlled—every trusted sighted person in my life reminded me to remain vigilant about my looks, and to defer to other people’s aesthetic preferences.

My clothes were selected for me, and I was not encouraged to develop my own tastes or sense of style. How could a blind person be qualified to develop such things? I straightened my hair for years because it was fashionable, even though it ate an hour of my life every single day and I didn’t enjoy the dry, staticky outcome. I submitted to makeup before musical performances and special events, but it irritated my skin and I didn’t feel I needed it. I worried constantly about things I couldn’t visually verify for myself, consumed by the fear that if I didn’t embody a narrow put-togetherness, people would never see past my disability.

From a shockingly early age, I was warned that a sighted world would expect me to be disheveled and clueless. I must not play into those stereotypes, for my own good and the good of blind peers. To seem as sighted as possible was to be respectable. Didn’t I want to be respectable?

As an adult, I gained more autonomy. I started choosing my own clothes and paying a friend to design jewelry according to my personal tastes. No anxious presence was hanging over my shoulder, insisting I look unhealthy without makeup. I haven’t straightened my hair in years, and hairdressers are always exclaiming over how healthy it is. (Refusing to scorch, dye, or saturate it with product will do that.) I followed dress codes where appropriate, and I genuinely enjoyed formal dress, but overall I embraced the intoxicating adult privilege of deciding for myself what I would and wouldn’t do to look a certain way to others. I got to decide that unless makeup and fashion and messing with my hair brought me joy, unless they were part of my authentic self-expression, I wouldn’t force myself to do them. Sure, I wore dramatic makeup on my wedding day, and I loved an excuse to pretty up, but I was no longer spending hours getting ready just to go get the mail.

Before the pandemic, I’d have told you I was being my best self. But my husband’s throwaway comment about my spontaneous colour coordination made me realize that my best, pre-pandemic self, while slightly more emancipated, was still a little exhausting. A lot exhausting, if I’m honest.

She worked very hard to be acceptable to the world, she worried about the opinions of people who had no power over her—who may not even have noticed her, in fact—and she expended her already-scarce energy coordinating her hair elastics with her necklaces with her shoes and so on.

She shied away from bright colours because what if, God forbid, she picked two things that clash a little? She dreaded the wealth of makeup tutorials for blind people, fearing the new baseline standards for blind womanhood would soon include excellent makeup skills, on top of all the other stuff she hadn’t yet mastered. She placed her body mass index above her health and fitness, because being visibly disabled was only bearable if the rest of her was without flaw, and because internalized fatphobia was a demon she hadn’t conquered yet.

So she was more autonomous, yes, and bold in her choice to rarely wear makeup and let her eyebrows go a little rogue. But was she free?

Oh no, dear friends, I see it now. She exchanged one type of restrictive lifestyle for another, told herself she was in charge, and called it good enough. It took a very different type of restriction to nudge her to the back, letting me step forward and realize that my ideal self never existed. Chasing her was only going to make me tired.

Staying inside a lot and living in sweats has not been my idea of a good time, and I do look forward to wearing dresses and skirts and blazers again. However, I’ve been confronted with the reality that the things that most need my attention are not, and have never been, my outer packaging. I should be more focused than ever on becoming a better cook, traveller, artist, friend and community member. Resilience and confidence will take me so much further than obsessive colour coordination anxiety. No one liked or admired me for my fashion sense, though I don’t do too badly on that front when I try. They liked me as a writer, musician, and loving human being, traits that will survive anything, even a pandemic.

In moments when the world feels like it’s ending, you want the confident, resilient people by your side. You aren’t going to care whether their hair accessories match their socks. You’re going to care about their ability to keep you safe and move things forward. More than a year into this, I feel like I’ve shed so much, and discovered even more. I can keep myself and others safe. I can move things forward. Everything else is just fear and marketing.

Who I am, in this difficult moment, is the only self with whom I ought to be concerned. She’s the only one who actually exists, and I like her for her increased interest in a more just world where a pandemic wouldn’t mean preventable death on a grand scale.

The thing is, when she’s not obsessive and fearful, when she’s working hard on things that bring real value, I quite like this new self. I like her renewed relationship with art for art’s own sake. I like her ability to do well at her job, no matter what she’s wearing while she does it. I like her practical acknowledgement that while we all fit ourselves into boxes to maintain a functioning society, she gets to choose whether to lose sleep over how well she is fitting inside hers. I like that, for the first time in decades, she is neither exhausted nor exhausting. While crises often bring out the worst in people, she has stumbled, quite by accident, upon her best.

Eventually, I will go back to my former life, the one where what I wear and look like does matter, regardless of what I might wish. I will start paying more attention to my appearance again. I will begin slotting myself back into mandatory boxes, just as before. It’s inevitable. Some form of confinement, in my line of work and way of life, is inevitable.

But obsessing, fretting, self-diminishing are optional. They always were, and I don’t think they will be useful for whatever is coming next. Faithful as they’ve been, familiar as they are, I think I’m ready to get to know myself without them.