What Do We Want? (Accessible Pin Pads!)

I love using my credit card for just about everything. I’m loath to spend my emergency cash on, say, that Starbucks coffee or carton of milk. Cash may be quicker—and for Canadians at least, perfectly accessible—but I’d rather save it for times when debit machines break down. I hate to ask a cab driver to stop at an ATM, for example.

There is a trend toward pin pads that are partially or totally operated via a touch screen, and it’s not an accessible one. Despite the fact that technology exists to make touch screens usable for blind people (just bring headphones), I have yet to encounter a machine that I can operate independently. If I’m lucky, the number pad itself is tactile. I’ve not been lucky.

Normally, I don’t make a huge deal of partially or wholly inaccessible products unless they seriously impact my and other’s lives (even though accessibility makes sense). This definitely counts as a product that does. What do you suppose happens when I face an inaccessible pin pad? That’s right: I have to reveal my pin. Usually, I’m with a sighted friend whom I trust implicitly, but since I do run errands on my own, as most blind people often do, I’ve had to give my pin to complete strangers. Yes, the likelihood of my pin being stolen is small, but it’s still possible and, with the theft of pins and replication of cards becoming more prevalent, it’s a real risk.

I feel that, for something as basic and necessary as payment methods, we have the right to total accessibility. I’m not aware of the advantages of touch screens, though I imagine they must exist or people wouldn’t be manufacturing them, but I’m not sure if they justify putting a chunk of the population at risk. Blind people aren’t statistically common, but we are definitely out there, and we deserve to keep our credit and debit cards secure, just like everyone else.

Since the technology exists to make these machines accessible, I see no reason at all for continued failure to implement it. I suppose this might involve a financial burden, especially if the machines are replaced rather than modified, but even if they are produced more accessibly in the future, that would reduce and eventually eliminate security risks for blind people. Once that’s done, we will face the same safety risks as everyone else. Machines will still be compromised, but at least we’re not being expected to give our pins away to people who could exploit them.

 

As fellow blogger Blindbeader points out, these touch-screen pin pads don’t just inconvenience blind people. They pose accessibility challenges for other populations as well: “I know several people who have good vision, but who have challenges using touch screen due to other concerns with their hands and fingers. To say nothing of the installation of such pin pads so high up that they cannot be lowered to those using wheelchairs.”

 

I understand that these things don’t always occur to manufacturers at first, but if we play our cards right, they’ll know, and then they’ll have no excuse.

So what do we want? (Accessible pin pads!)
When do we want ‘em? (Um…at a time that is sensible and financially feasible?)

Dear Sighted Friend…

I’m going to get a bit more personal this week, but my hope is that you will all find a bit of universality in this post, and share it with anyone to whom it might apply.

A few weeks ago, I lost a very dear friend unexpectedly, and her passing brought the value of her friendship into even sharper focus. She was one of those sighted friends who took everything in stride, made mistakes and learned from them, and viewed me as her friend who is blind, not her blind friend. I want to write about her today. I hope you see some of your friends in her. If you do, take a moment to thank them for their friendship. We don’t say these things enough; I know that now.


Thank you for taking the blindness thing in stride so quickly. It took you a little time, but you saw me, not my broken eyes. You supported me while I learned this adulting thing, and hardly considered it “helping”, even when it was. I worried about that dynamic far more than you ever did.
Remember when I would text you with all those blindy emergencies? You made living in a new city, a new neighbourhood, a new building, seem not only bearable, but fun.

Thank you for being unflinchingly honest with me, always. You confessed, early on, that you took me to lunch that first time because you thought I seemed lonely, and felt a bit sorry for me. Once you realized that blind people aren’t hopeless by default, you relaxed into being my friend, not my personal Mother Teresa.
Remember all those times you were blunt about being unsure how to treat me? You were so open and so kind about it, even when it hurt a little at the time.

Thank you for learning from your mistakes, and helping me learn from mine. You had some false impressions about blindness, and you were eager to clear them up. You didn’t know how to guide properly, but you soon learned. You sometimes said things that cut deep, but when I pointed out why, you focused on healing the harm rather than justifying yourself. Most importantly, you helped me grow by clearing up misconceptions of my own.
Remember when you almost walked us both into traffic, then burst into hysterical laughter because the guiding thing was distracting? You were so glad I wasn’t upset by it. Everybody messes up sometimes; you rarely did.

Thank you for your outstanding sense of humour. You were always cracking jokes, once you knew I was okay with them, and you let me laugh at myself in total comfort and solidarity. You approached everything with a willingness to laugh at hardship, and move on.
Remember when you proclaimed yourself to be my “guide dog?” We named you Scout. You always bugged me about getting a dog of my own (only so you could have “snuggles on demand”) but this was as far as I got. Your “guide dog” gallop was legendary.

Finally, thank you for being so much more than my sighted friend. Thank you for considering me as much like everybody else as any disabled person can be. Thank you for treating me, with a very few exceptions, like Meagan, not like blind Meagan. Thank you for blossoming into everything a sighted friend ought to be.
Remember when I wrote that blog post about friendship, and you took the time to remind me, for the umpteenth time, that I was so much more than your blind friend? I do. I always will.

I hope every disabled person can have someone like you around to make them laugh; to prevent them from taking themselves too seriously; to remind them that they are normal in all the ways that matter; and to help them grow.


I love you, Scout. Rest easy.

In a Zombie Apocolypse…

I was bonding with my parents yesterday evening, watching The Walking Dead, as one does. It got me thinking (as every little thing seems to do): in a zombie apocalypse, who would survive? Not me!

Besides the fact that I tend to freeze in life-or-death situations, I’m disabled. In the majority of cases, I’d be a liability, and there’s no point sugar-coating it. It’s not that blind people can’t defend ourselves. We can take self-defence classes like anyone else, and many of us are very adept at looking after ourselves. In a fight to the death, though, I wouldn’t put money on most of us, and certainly not on myself. Those walkers would reduce me to a mass of steaming entrails faster than you can say “On your left!”

So, why does this matter? Well, it highlights a simple fact of life: in many situations involving physical altercations of any sort, there is no replacing the human eye. While I have great reflexes (I can stop on a dime as soon as I hear a noise that frightens me), these would not help me much in a situation requiring a lot of unpredictable movement. The walkers aren’t going to stop growling menacingly long enough to tell me they’re coming at me, and very little other than Lady Luck would swoop in to save the day.

Lots of girls are used to being coddled unnecessarily, and this type of coddling is ubiquitous when you have a disability on top of your presumed feminine weakness. (I can’t speak for men, but I’m sure they face similar presumptions.) In a stressful situation, people’s first instinct is to bundle me into a safe corner and tell me to stay put while they deal with the scary, difficult, dicey stuff. No need to burden me. And, as is my custom, I try to understand where they are coming from. They are trying to do the right thing, and the worst of it is that they are sometimes correct that I can’t help out.

I joked about being a liability in a wizard duel, but that has darker implications, ones which I’ve never really been able to ignore. A few years ago, my house was broken into. Two men, intent upon stealing and nothing else, thank goodness, thought my house was empty and barged inside, trashing the house and, to my consternation, tracking mud all over the carpets (how dare they?!). I was in my bedroom on the second floor, cowering in fear and totally incapacitated by panic. Instead of doing the sensible thing and making my presence known, I trembled, and cursed, and hyperventilated, and pictured all the ways I might be brutally disposed of by these terrible monsters. (Fellas, if you’re reading this, thanks for not killing me, but next time, take off your damn shoes, okay?)

It turned out all right. One of the men opened my door, saw me, and just about lost his mind. They fled so quickly that I didn’t even have time to cross the hall and grab the phone before they sped away. I guess I’m scarier than I thought.

I did realize, on an intellectual level, that most fifteen-year-olds, weighing all of 120 pounds, would have been pretty helpless against these men even if they’d had a weapon. Even so, part of me was convinced that if I’d been sighted, I could have done more, or at least stood more of a chance. Maybe I could have identified them, or caught sight of something I could use as an improvised weapon—who knows? No one ever dared blame me for it or even comment on my particular inability to defend myself, but they really didn’t have to: I was all too aware. There are plenty of blind people who could have held their own; I’m not one of them.

It’s pretty depressing, really, knowing that in plenty of cases, I can’t be of much help to myself or others. If there ever was some kind of global crisis, God forbid, I would be classified as a liability and lumped in with the elderly and ill. I would be that lone straggler in the herd of caribou, just waiting to be snapped up by a pack of opportunistic wolves. Sure, I could fight, and sure, I could flee, and sure, I’d have normal human instincts, but I still don’t like my chances.

So, okay, an apocalypse is very unlikely. Life-threatening situations, however, are not. People find themselves in them every day, and there’s a decent chance I might be in one again. How would I handle it? Would I be defenseless? Would I be rendered even more powerless by my disability? If I was with others, would I be useless, or worse than useless? Would I be in the way? Would I cost someone their lives because they were trying to defend me along with themselves? Deep questions, folks, deep questions. So far, I don’t like the answers.

I’ve had enough of zombies for now. Excuse me while I go watch something involving fairy princesses.

On The Outside Looking In: Why Facebook Is A Terrible Friend

I remember a glorious time, back in, say, 2009, when Facebook was a legitimate way to keep up with people I cared about. Most of the content was generated by real-life experiences my friends and family were enjoying (or enduring as the case may be) so I was able to participate quite easily. And then…

After a couple of years of relative contentment, a new trend emerged: personal, original content was largely replaced by external content (usually photos). Every time I scroll through my news feed, I encounter shared posts about well-loved photography, inaccessible articles, and random pictures of, I dunno, cats. Sheepish as it makes me, I must admit that I feel more and more isolated. I can no longer participate as fully as before. I can no longer keep in touch in any meaningful way.

I’ve discussed how to make posts more accessible on Facebook, and reassured sighted users that they don’t have to describe every single photo, whether personal or shared from an external source, in expansive detail. It’s way too much bother for limited reward. I can’t pretend it doesn’t make me feel like I’m being excluded, though. Instead of hearing about the antics of my friends’ cats, I miss out entirely because photos tell a better story. Instead of enjoying a new recipe a friend posted, I get to scroll right by because the text is inaccessible. Instead of laughing along with my friends’ favourite image-based jokes, I get to hope that the accompanying comments will give me enough context to go on. Most of the time, they don’t, and while I occasionally ask for explanations if I’m really intrigued, I hate to do it. Ain’t nobody got time for that.

I thought perhaps my feelings were exaggerated. How much of my feed was genuinely hidden from me? I wanted to find out, so I performed an informal experiment. I scrolled through the last hundred posts in my news feed (yes, it took ages), “hiding” all the posts that featured only photos shared from external sources. Eighty-six percent of the posts were eliminated. It was even worse than I’d thought. While I can comfort myself with how clean and clutter-free my news feed is, that comfort is awfully cold.

I’m probably not missing much in the grand scheme, I know. Considering all the other consequences of inaccessibility, this is really small potatoes. Even so, a lot of my friends and family spend so much time appreciating other people’s image-based posts (some spend hours on Facebook per day) while I spend five minutes, tops, because there’s nothing to see. (Yes, it does wonders for my productivity, but still!)

I’ll get over it, I really will. Most days I don’t even think about it; but I admit to moments of weakness when I let it bug me. Social media can make people very lonely, and this is a special type of loneliness that won’t ever go away, not really. Facebook is implementing groundbreaking image recognition technology to help blind people figure out what’s in an image, but there’s no telling how accurate or useful it will be.

Like I said, most days it’s no biggie. Just for now, though, I’ll have a bit of a wallow. Indulge me.

You’ll Never Be a Copyeditor!

Last fall, I published ““The Dreaded ‘Can’t’ Word” in which I discussed an instructor’s refusal to accept me in her copyediting class. The course, which is an integral part of my Bachelor of Communication Studies degree, was one I had been looking forward to for more than a year. I’d long been interested in pursuing editing as a career path, and the copyediting course was to be the necessary foundation.

Stricken, I fought the decision. I argued that a blind person can do at least 80% of what a sighted copyeditor can do, if not more. I argued that I’d still be employable, even if I had to go about things in a different way than this instructor was accustomed to. I even offered to drop out in the event that it became clear things weren’t working out, either for her or for me. All in vain, I’m afraid. She ultimately told me I’d never be a copyeditor, and that she would not waste time teaching a student who would not be employable anyway. And that was that.

I’ve since taken the course under a different instructor. It was incredibly difficult, and while I did manage an A, I slaved for it. It was one of the hardest, most stressful experiences of my academic life. It’s not what you think, though: it had nothing at all to do with the actual coursework, and everything to do with the extra burdens I felt I was carrying. You can be the most brilliant student alive (I’m definitely not that), but if you’re stressed enough, you will flounder every time.

Most blind people I know have had to “pave the way” at some point in their lives, whether it be at work or in school. There’s a first time for everything, and people with disabilities tend to end up with a lot of those firsts. For example, I was the first blind student my local school division had ever dealt with, at least in recent memory. I was certainly the first blind student any of my teachers had ever taught, so my education was filled with a lot of trial and error—emphasis on the error, might I add. For the most part, they were brilliant—innovative, compassionate, and eager. For years, I thought I was tragically bad at math, because passing those courses took twice as much effort as any of my other subjects combined. I later realized that, while I’m no math genius, the bulk of my struggles was due to an inability to process the visual concepts we were being taught. Many of my math teachers taught in exclusively visual ways, and didn’t know how to make the material comprehensible to me. Several other blind people—being naturally excellent with numbers—overcome these challenges with ease. If you’re like me, though, being unable to see the material is going to make math a living hell.

I was pleased, then, to transition to university, where I didn’t have to be the very first. Sure, I was the first blind student to enter the relatively young BCS program, but not the first blind university student. There was even an entire department dedicated to helping students with disabilities. Indeed, all was smooth sailing until I reached this copyediting course, in the third year of the program. Abruptly, I was hitting a wall: for the first time, I was being told “you can’t do this.” And, after fighting as hard as I did to get the chance to try anyway, I felt that I could not fail. The margin for error, I felt, was entirely nonexistent. If I messed this up, I thought, I’d be letting a whole host of people down, including my instructor, future blind students, and myself. No pressure, yeah?

Feminists have often grumbled that a woman must work twice as hard as any man to be considered half as valuable. I definitely felt that type of strain while doing this copyediting course. I felt that I had to be absolutely brilliant, as though my place in that class needed to be justified. No sighted student needs to justify her presence in a classroom. As long as she has the prerequisites, she is free to pass or fail, and no one will question her right to be there. I, however, had the uncomfortable impression that I was a case study of sorts. A trial run, if you will. You want blind people to be allowed into copyediting courses? Fine. Show us what you’re made of, missy.

As is typical, this was all in my head. No one from the administration said anything of the kind to me. My instructor treated me like any other student, and was more accommodating than I ever could have imagined. All my friends and family were convinced I’d be just fine. Fellow students in the program rallied around me in unexpected but welcome ways. Nearly everyone was wholly supportive, and no one was worried but me. Yet, I walked around with this heavy burden on my shoulders, almost entirely of my own making.

Why do we do this to ourselves? Why do we take responsibility for things we cannot possibly carry? Why did I place such unnecessary stress on myself? Was I so arrogant as to believe that my progress in the course would have an effect on future students?

Hindsight tells me it had nothing to do with arrogance. I think it was a mixture of pride (I can so be a copyeditor!) and fear (I hate to let people down). I thought that perhaps if I did well, the university would be even more willing to accommodate students who may face unique challenges. Perhaps the instructor who had been so pessimistic would change her tune. Perhaps my experiences could be used to help someone else in a similar situation. I really think I carried these burdens—real or not—because I wanted to please everyone, including myself. I wanted to justify my place here, to myself as well as to others. I wanted to belong, and I believed that in order to belong, I’d have to positively shine. Being mediocre was not an option, not for a blink.

It looks like I’ll be a copyeditor. Despite the hardships, I thoroughly enjoyed the course and I am now taking the higher-level editing courses. I’m having a great time and I’m really finding my feet. I’m becoming more confident every day. But I won’t soon forget how this past semester felt.

I’ll conclude by saying that if you ever find yourself in a situation like this—where you are, in essence, a trial run—don’t do what I did. Consider me your cautionary tale. Focus on you, and what you’re doing. If you’re proving anything, it should be your ability to ignore the unwarranted pessimism of others. You’re not responsible for someone else’s future. You can only be responsible for your own. Educate, by all means. Advocate, by all means. Work hard and do well, by all means. But do it for yourself.

An Open Letter To journalists Everywhere

I recognize that writing about people with disabilities is challenging. There is immense pressure to be politically correct, inoffensive, sensitive. It seems that no matter what you do, you’ll offend someone. So, because it’s so difficult, I want to give you some guidelines. I’m not perfect, so they won’t be, either. Still, they should be useful.

Dear journalist: call a spade a spade. Don’t stumble too much over the most politically correct terminology. Don’t refer to us as “differently abled”—we’re not. If some part of our bodies does not work, we are disabled, end of story. It is probably best to refer to us as “people with disabilities” because it places the emphasis on the person rather than the disability. Honestly, though, the distinction isn’t vital. No one should be hanging you out to dry over writing “disabled person” instead. If you’re covering blind people, just call them visually impaired. Not everyone is totally blind, so visually impaired covers all the bases quite nicely. I’ve never personally witnessed a blind person be offended by that term, so you should be safe.

Dear Journalist: we are not inspirational by default. Most people with disabilities are just “normal” people living their lives as best they can, like anyone else. Occasionally, we’re capable of inspiring things, but automatically referring to anyone with disabilities as “inspirational” drives most of us crazy. Look it up: you’ll find numerous articles on the subject. We know you mean well, but it can feel patronizing; it’s almost like a backhanded compliment. I’m not inspirational because I manage to attend university, or get a job, or do a myriad of other things everyone else does. Calling me inspirational for such mundanities borders on insulting. If a blind person manages to pull off brain surgery, then we’ll talk. Until then, don’t do it.

Dear journalist: it’s not all about the disability. If you are interviewing someone whose accomplishments have little or nothing to do with their disability, leave the subject alone. In “My Blindy Senses Are Tingling,” I talk about a cat breeder friend of mine who was being pestered about the “special bond” she must have with her cats simply because she can’t see. While some aspects of cat breeding and showing are more difficult for her—grooming for shows, for instance—she repeatedly denied that she had a truly special bond that only blindness could facilitate. The interviewer seemed annoyed by this, and the interview was never published. So, there is a lesson here: don’t fish for what isn’t being readily offered. Sometimes, we’re just people doing ordinary things. And, when what we’ve done is extraordinary, don’t harp on the disability aspect unless it’s relevant. There is more to us, I assure you.

Dear journalist: please don’t glorify everything we do. I continually see (see what I did there?) headlines like “Disabled Person Does (insert random and boring action here)—What A Hero!” No. Just … no. Again, it’s patronizing and potentially insulting. We’re not heroes because we do things. I follow a lot of people with disabilities on Twitter, and I see the following all the time:
“A disabled person does stuff!” – journalists everywhere
It’s so frustrating to see that one of us is in the news again, for something that shouldn’t be newsworthy. It shows the public that they should be surprised and inspired whenever they witness a person with disabilities doing something even mildly interesting. It reinforces the misconception that we are hopelessly abnormal, and every little good thing we do should be glorified. We already fight this mentality enough in our every day lives; please try not to perpetuate it.

Dear journalist: don’t glorify others, either. I actually read an article the other day, which praised somebody for guiding a disabled person across the street. Apparently this is what passes for news these days, but I digress. One would hope that such helpfulness would be commonplace. I have received a great deal of assistance from total strangers over the years (some wanted, some not), and while it’s appreciated, I wouldn’t necessarily write a news article about it. Again, this perpetuates the stereotype that we are in constant need of help—which we are not—and also tells the public that anyone who does help is something more than a nice person. Suddenly, they are special just because they showed someone kindness. This would never be considered unusual if a person helped someone without a disability. So you helped a woman carry her groceries out to her car…do you want a medal? Maybe a cookie? No, of course you don’t. You were just being a nice person, right? Don’t publish articles simply because someone did something nice to a disabled person. Pretty please?

Finally, dear journalist, don’t worry too much. None of us wants you to mess up, and most of us will not spew invective if you do. We realize that there are so many ways to get it wrong. If you make mistakes now and then, no one should be crucifying you for it. You’re just doing your job. I get it. Just be careful. Try to follow these basic guidelines, and you should be fine. I know you don’t intend to propagate negative stereotypes, or myths, or misconceptions. I have enormous respect for what you do; I know I couldn’t do it. So, with this in mind, do your best to respect us. That’s all any of us ever wanted.

Humble Pie, Anyone?

I certainly never pretended to be an expert on all disabilities, or indeed even on blindness in general. Still, if you’re going to write a blog about how to treat people with disabilities, you might want to practice what you preach. Most of the time, I do: I do my best to be sensitive. I try not to ask intrusive questions (unless I have permission) and I try to do my own research so that I’m not wandering around in a state of complete ignorance. This isn’t perfect insurance, though.

I interact with an awful lot of people who are blind. I know many of them personally, but I also follow a lot of them on social media. I don’t go out of my way to befriend them, but it’s good to know what everyone is up to. We can be a remarkably helpful community when we’re not busy judging each other. But I confess my knowledge of other disabilities is extremely limited. I have almost no experience with those who are hearing impaired. I only know a handful of people in wheelchairs. I’ve known a couple of people with mild autism, but not well. My experience with developmental disabilities is even more scant. So, I occasionally make the same types of mistakes sighted people make when getting to know blind people. And it dismays me every time.

Just the other day, I was chatting with a friend of mine who has cerebral palsy and who is also blind. He uses a wheelchair for longer distances, and I found myself asking, “Oh, how does that work when you can’t see? Do you have to be led?” Of course, it was an honest question, and I meant no offence at all. Like so many well-intentioned questions, though, it was a careless one. He responded with, “Led? What am I, a dog?” he then said, “I can usually follow voices.” He was gracious enough to let us both laugh it off, but it was an awkward moment, for me especially. In this area, I realized, I was as clueless as the average sighted person asking silly questions on the street. Yes, he is a friend, and yes, I meant well, but I didn’t even consider the possibility that it might have been better to either rephrase my question or just google it later and ask him how much of the information applied to him. It’s always a shock when you realize that you’re doing to others what you don’t want done to yourself.

I’ve had some equally awkward moments when physically interacting with people. A few years ago, at a university orientation, there was a student in a wheelchair. I don’t know her at all, so I have no idea whether it was temporary confinement or whether she had a permanent disability. Either way, I remember being upset because none of the other students was bothering to talk to her. She was sitting by herself, while everyone flowed around her like current around an obstacle. I’m sure they weren’t trying to be exclusive or malicious. They probably didn’t think anything of it, or, if they did notice her, they probably felt shy. It’s difficult enough to approach strangers as a nervous young student, and harder still if you feel like you might make an idiot of yourself. I’m sad to say that, while I wanted to go and speak to her, I felt stuck. Should I go over and stand beside her? Say hi? Would it be more appropriate to kneel down beside the chair so we’re at the same level? Should I just leave her alone? And on and on.

This is difficult for me to admit, because I find it really shameful. I thought I was above this sort of thing, but I’m beginning to think that few of us are. After the recent incident with my blind friend, I promised myself that I would get better at this. I will educate myself as much as I can, as sensitively as I can. Others will probably think I’m being unreasonably careful, but treading softly seems in order here, at least in some cases. Until I have legions of friends with diverse disabilities whom I can pester with questions, I will have to rely on whatever research I can do on my own. I never want to put myself in a position where I have absolutely no idea what I’m talking about. At worst I will cause offence, but even at best, I’ll feel woefully uninformed. And there’s just no excuse for that. And the shyness? The refusal to meet new people just because I’m frozen with indecision? That has to go.

I imagine many people with disabilities are far better-informed than I am. It might, however, be a good idea to take stock of your current knowledge and determine whether you might be at risk of committing the same cardinal sins as so many able-bodied people. No, it’s not the end of the world if you make a mistake, and no, you don’t have to go to the lengths I plan to go. But I imagine there’s enough humble pie to go around, at least for most of us. Dig in!

Believe Me: There Are Worse Things

I’ve often observed that people react to blindness as though it were the worst fate they could possibly imagine. Of course, for some it probably is (though I do wonder how good their imaginations really are). Sympathy (sometimes misplaced, sometimes welcome) abounds for visible disabilities like deafness, blindness, paralysis and so on. What we lack, though, is compassion for those with invisible disabilities–and they may be the ones who need it the most.

I’ve always been blind, and most of the time my life has still been full and happy. But I carry heavier burdens, too—burdens which aren’t easy to see. Among other issues, I suffer from chronic tension pain, migraines, and mental illness. Unless you come upon me walking out of a psychiatrist’s office or holding my head in pain while I throw up on the sidewalk, you won’t know any of this simply by watching me go about my day. Blindness causes me to suffer in highly visible ways; it’s hard to miss it when I trip over a chair or smash headlong into a wall. At job interviews, employers become immediately nervous as they mentally catalogue all the problems they anticipate. They wonder about how I will keep up with the workload. They wonder how I’ll navigate the building safely. They wonder whether my screen reading software will be supported by their current systems.

They don’t wonder how I’ll attend work regularly. They don’t wonder how I’ll find the emotional, mental, and physical energy to make it through the day without collapsing. They don’t wonder who will drive me home when I’m too weak and sick to walk unaided. They don’t think about the leave I might need if my mental state becomes too precarious.

They can’t wonder these things, because I don’t go out of my way to reveal them. Some stand behind the policy of full disclosure: get it all out of the way now so that awkward questions and explanations aren’t needed later. Really, though, If an employer won’t accept me because of a relatively superficial disability—one that can be easily accommodated—how will they feel when I reveal far more debilitating disabilities? Let’s face it: having malfunctioning eyes has nothing on being in excruciating pain, or feeling so low that you want to die.

Sometimes, I fear that people will judge me harshly if I divulge too much about my “other” disabilities. I worry that they’ll think I’m crazy, or whiny, or simply delusional. Will they label me an attention-seeker? I mean, I’m blind plus six other issues? When does it become suspicious-looking? I’ve been blessed with many compassionate people in my life ranging from friends, to coworkers, to instructors. They’ve done their best to let me know that I’m okay, no matter how many things are wrong with me, and that I don’t have to feel guilty about what I can’t control. Conversely, though, I’ve had people become frustrated and offended when I cancel plans due to a sudden migraine (it’s not like I plan them!) or bow out of an engagement because I’m feeling too down to even get out of bed. Each time this happens, my first instinct is to blame myself, even when I know better. It’s easy to convince people that my broken eyes aren’t my fault; it’s harder to convince them that I don’t choose to be depressed, or lie abed all day in pain. Some of them won’t say it outright, but it’s clear as day that they doubt me. I can’t articulate what it’s like to know that it is only my least debilitating disability that people will feel any empathy for. I don’t need help across the street as much as I need a sympathetic ear and maybe a hug.

The pitying sighs get to me after awhile, partly because I don’t need them (I get along fine, thanks) and partly because they are so misguided. I don’t want a pat on the shoulder because my eyes don’t work; they never have and they probably never will. I don’t need them in order to live contentedly. What I do need, though, is energy, will, and strength. My invisible disabilities strip all of that away on a regular basis, leaving me to struggle along in the wake of emotional and physical suffering.

Now, before I go any further, let me make it clear that I’m not saying that blindness doesn’t have its downsides. I’ve done little but write about them for the past few months. I’m also not trying to run a fishing expedition here: I’m not claiming that everyone should begin pitying me for something other than blindness. Ideally, I don’t want any pity at all. But considering the ample sympathy that is heaped upon those with visible disabilities, it would be nice to distribute some of it to those whose pain is less evident but no less unbearable.

No, you won’t be able to tell who is suffering from what unless you make a habit of asking people intrusive questions (and we all know how I feel about those). But if someone comes to you with a clearly visible disability, don’t automatically assume that it is the only battle they’re fighting. For as John Watson so aptly observed, you should always be kind, for “everyone you meet is fighting a hard battle”.

It took a great deal of personal courage to write this post, humble as it is. As I’ve said, I usually take pains to hide these parts of myself, lest I be misjudged or shunned. But as Gregg has taught me, silence is our worst enemy here. If people like me don’t speak up, then no one can understand. You can’t offer compassion for what you don’t know exists. It’s blogs like these which need to be written. It’s conversations like these which need to take place. We need to know that we can be honest. I live for the day when being frank about what I can’t control will not bring me shame or guilt, but relief and a sense of peace.

Go Ahead, Laugh!

People can become very twitchy about humour in relation to disability. Laughing at any aspect of it can seem a transgression of the gravest sort. How could anyone with a conscience make fun of the poor little blind girl, right? Barbaric!

Contrary to this belief, I find humour inexpressibly helpful; indeed, sometimes I’m not sure how I’d survive without it. There are many situations in my life that seem to demand tears. When I can’t (or won’t) cry, I can always laugh. Laughing can defend me from the scorn of others; it can shelter me from the humiliation of what has just happened; it can strengthen me in the face of whatever it is I’ve messed up this time; and it can encourage others to laugh the hard stuff off, as well.

Take a simple blunder like this one: during a camping trip many years ago, I was visiting with my sister, a friend of hers (a stranger to me), and a cousin. All evening, my cousin had occupied the same chair. I usually pay attention to where people choose to sit, as it makes it easier to interact with them with a modicum of social grace. Believe me, I need all the grace I can find. Unfortunately, this system isn’t infallible, as I was soon to discover. Assuming that my cousin was still seated where she’d been all night, I went up to her from behind and hugged her, crooning “I loooove you!” for good measure. Without missing a beat, my sister’s friend replied “Aww! I love you too, Meagan!”. I wasn’t about to cry…so I laughed. This wonderful person had the grace to laugh with me.

Social slips like that one are sometimes enough to make a rather shy girl like me recoil in horror, retreating into a ball of humiliation until everyone else has long forgotten the incident. I have, however, learned to use humour as a tool to handle embarrassment with confidence—something that is essential when trying to put others at ease. If you’re planning to pursue a career in communications and public relations, as I am, networking is an unavoidable component of the field. I learned early that if I pretended I was comfortable with my “blindness mistakes”, others would become comfortable with them as well. Getting them to giggle with me over them is even better, so I aim for a laugh almost every time. Of course, if the slip is tiny, it’s sometimes better just to let it rest; chances are whomever I was with didn’t even notice it anyway. No need to draw more attention to myself than I already do. And you know what they say about faking it till you make it…that really works. Since using humour as an instrument of social bonding, I’ve become much more at ease in my own skin, even in the most terrifying of public situations.

I’d like to address something far more important, though, and perhaps far less well-known to people in general. From a very early age, I have acknowledged the benefits of a little gallows humour when things go horribly, horribly wrong. While blindness doesn’t often put me into devastating situations akin to, say, terminal illness, it certainly tests my patience and fortitude at times. I’ve talked about getting hopelessly lost, being denied essential opportunities, and struggling with a minor identity crisis. All these things would have been so much harder to bear had I been unable to laugh at them. Even some of the small stuff—submitting essays with messy fonts, groping strangers on the bus, and tripping that poor guy on crutches (more on that later) seem a little worse than they actually are while they’re happening.

Reactions range from admiration to outright horror when I make light of serious issues surrounding my disability. It’s as though people think I’m degrading myself by laughing at it, even though it’s my issue to laugh at if I please. “Don’t talk about yourself that way!” they exclaim, leaping onto soap boxes that have appeared from thin air. I always respond the same way: “I need to laugh. If I don’t, I’ll cry, and nobody wants to see that.”. While there’s nothing wrong with venting frustration or sorrow in whatever way suits, I generally prefer a good belly laugh to a storm of tears. Besides, I’m far less attractive with a red nose and puffy eyes and, as we all know, unattractiveness is a tragedy!

It is true that the suffering experienced by those with disabilities is no laughing matter in general. It is not to be taken lightly and should be treated with some solemnity and respect. With this in mind, it is perfectly acceptable for both the sufferers and those closest to them to find a little humour in a bad situation, especially if the alternative is to wallow in despair. I realize that this might seem like clichéd advice, but it’s advice that few people actually seem to take. Maybe it feels like crossing an invisible line, over which you might be considered callous or unfeeling. But they don’t keep doling out this advice for nothing. It really works; this pronouncement comes from a veritable flood of experience. I’ve been in just about every hopeless situation a blind person can find themselves in, and humour has helped me out of nearly all of them.

We’ve all heard the wry, brave humour of the desperately ill, bereaved, and endangered. Their ability to laugh at themselves and their various predicaments isn’t just something to be admired; it is something to be imitated. Even if you don’t feel in the least strong, laughing at your problems will make them seem more manageable, even if nothing has changed. Laughter, after all, means that you’ve gained some distance and perspective on the issue, and are able to find whatever silver lining there might be in it. It’s not just about putting on a brave face and displaying the appropriate heroics. It’s also about lightening your burdens as much as you can, and allowing others to lighten theirs as well. You can be sure that if you’re suffering, someone else is suffering with you. Do them a favour: make them laugh.

Don’t Just Stand There: On the Disturbing Nature of “Rubbernecking”

This morning, I was reading an article about a legally blind woman who strayed off of a snow-filled sidewalk and into the street, just missing a guard rail that would have kept her on the correct path. She must have slipped and fallen, because she was seen on her hands and knees in the street while cars zoomed by, honking furiously. Evidently, people were taking the time to honk and curse with frustration—not to mention stare at her—but no one seemed to be interested in actually helping her. Finally, a city official noticed her, changed lanes, and offered her his help. I came away with a sour taste in my mouth: I am continually dismayed by people’s ability to gawk openly at someone in distress and fail to help them. Surely if you have time to stare at someone, you have time to help them!

I recognize that if a situation is horrifying or confusing enough, people might not know how to react and will therefore remain frozen with indecision and/or shock. This article, by itself, might be dismissed on the grounds that we weren’t there and we can’t know exactly what people were thinking when they passed this poor woman by. But…

I find it harder and harder to dismiss stories like this, because they crop up often enough to suggest a pattern. As I’ve mentioned before, people are prepared to treat me like a spectacle, but not often willing to actually help me in any way. This proves true for many disabled people of all types; people see us, but they don’t necessarily interact with us the way they would with anyone else. It’s almost like the oft-quoted “it’s like a train wreck…I can’t look away” scenario with a slightly twisted edge. How can otherwise perfectly decent human beings be aware that a person is in need and refuse to lift a finger?

It’s a complicated issue—one which my family and friends have occasionally discussed with me. They claim that, since knowing me, they are far more willing to offer help to disabled strangers, and far less able to stand by and watch those strangers struggle. Indeed, an old acquaintance once told me of a young blind woman struggling to navigate an unfamiliar restaurant. She was having difficulty locating a seat, and was becoming visibly upset. According to this acquaintance of mine, several men in business attire were sitting around watching her, some of them actually daring to laugh a little at her confusion. He was astonished that they’d have the gall to notice her predicament enough to find humour in it, and still refuse to ask her if she needed any help. It reminded him, he said, of cruel children on a playground. Unable to stand by and watch, he rushed over to assist her. He later confessed that knowing and caring about me probably spurred his desire to get involved, and heightened his sense of justice.

The more we see this twisted style of rubbernecking, the more it becomes normalized and, by extension, tolerable. Whether you are disabled or not, you’ve likely been in situations where you could have used some help but were completely ignored by those around you, even though they could all see your plight. I have always asserted that having a disability gifted me with a strong sense of compassion, and I find it heart-rending to bear witness to another’s need without at least considering stepping forward.

Don’t misunderstand me: this does not give a person license to approach any and all disabled people and immediately begin forcefully thrusting help upon them, whether it’s wanted or unwanted. It does mean, though, that we could all be a little better about offering that assistance, and being willing to give it if it’s solicited. This goes for disabled and able alike, by the way. We’re all human, after all, and most of us will require a stranger’s kindness at some point in our lives. That paying it forward thing? Yeah, that’s pretty cool, even if you never get it back.

I understand the helpless, frozen feeling associated with witnessing someone else in danger or need; I’ve even written about a time where I allowed this sensation to paralyze me completely. In my mind, though, there’s a great deal of difference between wanting to help but not being sure how, and sniggering with derision as you gawk away. C’mon, guys; we can do better. I have seen over and over that we are capable of great kindness. Let’s see more of that, okay?